Intellectual and Development Disabilities and Dementia

The resources below, while written for families of adults with intellectual disability, is a useful tool for anyone who provides care.

Caregivers play an important role in the overall wellness of individuals they support. Our goal is to provide information that will be helpful to anyone who cares for adults with intellectual disability. As individuals with an intellectual or other developmental disability age, you may see changes that are confusing and upsetting. It can be frightening not knowing what is happening to them or
how to best support him or her.

These resources were designed to provide caregivers of individuals with an intellectual disability an overview of dementia, as well as provide information about caregiving and support options available in Rhode Island.

These resources were supported, in part, by grant number 90AL0014-01-00 from the U.S. Administration for Community Living, Department of Health and Human Services.

Thanks are extended to the collaborative partnership between the Seven Hills Rhode Island Specialized Supportive Services for Adults with Intellectual and Developmental Disabilities and Alzheimer’s Disease and Related Disorders Project, the National Task Group on Intellectual Disabilities and Dementia Practices, and the Alzheimer’s Association of Rhode Island.


Free Web Based Education and Training Resources for ID/DD and Dementia

“Legal and Financial Planning for an Individuals with ID/DD and Dementia”  

Healthcare Provider Webinars (includes free CE’s for physicians): 
#1 Alzheimer's Disease and Related Dementia in Patients with IDD an Update for Healthcare Providers
#2 Dementia and I/DD; The Impact of Behavioral Challenges and their Treatment 

“An Introduction to Dementia and Intellectual/Developmental Disabilities”

"Health Care Advocacy for Individuals with Intellectual and Developmental Disabilities: An Overview for caregivers"

“You May Not Know Me, But I Know You!” An introduction to talking to individuals with ID/DD about Alzheimer’s and Dementia  

Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders  

Talking About Dementia: A Guide for Families, Caregivers and Adults with Intellectual Disability
 
Things to Know about Health and Adults with Dementia: A Guide for Families, Caregivers and Adults with Intellectual Disability